Showing posts with label testosterone bw. Show all posts
Showing posts with label testosterone bw. Show all posts

Saturday, June 2, 2012

To My 16-Year-Old Self

My history with irregular periods has been a long one.  Most of the time I've just been pushed around by doctors telling me it was normal.  Being young I just accepted it.  But what if I could go back in time?

I got my first period when I was 11.  They were every month after that, pretty regular.  Not in the sense of every X number of days, but enough for me to at least tell the week it was coming in.  This is common for a teenage so I never thought much of it.

When I was 16 I missed a period, but then I got it the following month.  I wasn't sexually active at the time so being pregnant never crossed my mind.  I heard skipping a month here and there was normal. 

A few months later I skipped another month.  Then I skipped two months in a row.  I was 17 and had my first pregnancy panic attack.  My boyfriend ALWAYS used a condom.  Sorry I'm not as stupid as the girls on 16 & Pregnant, then again the punishment my father would have given me would be far worse than getting my own TV show.  But condoms do have a failure rate.  After 90 days I did get my period again.  

Over time it became less of skipping a month and more of just long periods of time.  Being able to approximate the week I was going to get my period in was long gone.  It was replaced with not even being able to tell what month I'd get it in.  Friends, even myself from time to time thought that was great. 

My mum was out of the picture most of the time, and I just lived with my father.  I was embarrassed to go to an OBGYN and in the early 2000's I began surfing the internet for anwsers.  I learned I would be described as oligomenorrhea, but why did I have this?  Was I stressed?  No.  Was I underweight?  Maybe, at the time I was 5'1" and 105 lbs.  The one condition that kept coming back to me in search engines was PCOS.

I went to Planned Parenthood at age 18 and they put me on birth control pills to fix this problem.  It worked but I kept throwing them up.  No one realized that I was estrogen dominance and they were giving me pill with high levels of estrogen in it.  They lead to even higher levels of estrogen in my body and a lot of time spent over the toilet.  The only thing that regulated my periods and I didn't get sick from was Depo-Provera.  And when I say regulate I mean it stopped my periods all together, for years.

Over the years I mentioned my problem to many family practices, Planned Parenthood and OBGYN.  Some didn't want to bother with testing or told me I'd outgrow it.  Sure maybe I'd have a little be harder time getting pregnant, but I'm not infertile.

It wasn't 'til Fall of 2010 when I heard that not all women ovulate.  I was one of them.  It's wasn't 'til Spring of 2011 that I was told I have mild PCOS because my periods are irregular.  Then Fall of 2011 again told I have PCOS because my irregular cycles.  Then Spring of 2012 before they found cysts and high testosterone.

It took eleven years and over eight doctors to come to the conclusion that I have PCOS, something I told them all along.

Advise to my 16 year old self:

  1. You're not going to outgrow it
  2. Do your research
  3. Birth control has evil side effects
  4. Depo doesn't cure PCOS, nor does BCP, it hides it
  5. Don't waste your money with BC or condoms for contraception, you're already infertile, you don't need them
  6. Temping your cycles is a waste of time at predicting when your period will come if you don't ovulate
  7. Be way more of a bitch than you think you need to be
  8. Don't listen to some idiot doctor tell you there is no cure or no need to know if you have something or not
  9. If one doctor will not listen then move onto another one
I don't really like country music.  But I found this video awhile ago and thought I'd share.



-Selbe

Wednesday, May 30, 2012

Much Better Day

Special Puppy
After many phone calls and rushing my old records (which were supposed to be transferred over a month ago) we finally got what we wanted.

Provera & Pregnancy Tests

They gave me Provera.  Same 10mg but seven days this time.  I'm on day two of seven and I usually get AF 14 days after the last pill.  So CD1 in about three weeks.

Before the Provera they made me get a pregnancy test.  A urine PG test.  What is that?  I thought I would explain the two types of PG tests.
  • Qualitatively - Meaning you get a "yes" or "no" if hCG is found.  Never a maybe.  This is with all urine tests (lab or at home) & some blood tests. 
  • Quantitatively - You get a number of how much hCG is found.  Results are based on the number, so < 5 is not PG, 5 to 25 maybe, and > 25 is pregnant.  This is always blood and used by all REs.  I've never heard of an RE using a urine test.  This is also good because after multiple blood tests they can look at the trends in number to see if there is a problem with the pregnancy.  In the infertile world this is simply know as "beta".  
After being infertile this long I feel like a urine test is too much work for me.  Blood tests I just hop up on the chair, they stick me with a needle and then 30 second later I'm patched up and out of there.  It's more "painful" for me sitting in the overly crowded waiting room than the actual needle.  The urine test they gave me a bag with a cup, wipes and stickers and told me where the bathroom was.  Next I'm standing the the bathroom looking at the 12 steps on the wall of instruction on how to give a urine sample.   Then wondering to myself if this is enough pee to fulfill their 30ml requirement.  This is too much work, just stick me with a needle next time.  Anyways, it was negative.

Clomid Increased 

They decided to give me the Clomid this cycle, as long as I go to the high risk appointment on the 26th.  This also means I am doing Ovidrel with IUI.  Yay!

Last week they wanted Clomid 50mg for me.  After reviewing my records today they decided to increase my dose to 100mg.  Though I still hate Clomid I have more hope in 100 over 50.  

Frozen Sperm

We went into Seattle to freeze Bean's sperm yesterday.  It went well.  I don't have a count or any other numbers.  But he did produce one vial worth for freezing.  It's sperm in the freezer so I should be happy.  And we do plan on doing it a couple more times in the next few weeks.  But does one vial per ejaculation sound normal?  I'm trying to Google and it seems like only one is used per IUI.  Sustained all of Saturday, Sunday and Monday.  

I'm so grateful that Bean goes along with these ideas.  I know it's not easy to jerk off in a strange room with people walking around outside. 

Blood Work

Last Friday I has another series of blood work, seven vials this time.  I looked at my hand after he got done and it turned purple with white spots.  It was pretty amusing to me.  Today I picked up the results.


Selbe's Normal Range
Estradiol 134 27 - 433 pg/mL*
DHEA 205 18 - 391 ug/dL
LH  14.31 1.2 - 103.03 mIU/mL**
FSH 6.28 1.79 - 22.51 mIU/mL ***
Prolactin 10.53 3.34 - 26.72 ng/mL
Insulin 8.86 1.9 - 23 uIU/mL
Creatinine 0.8 0.6 - 1 mg/dL
ALT 32 30 - 65 U/L
Fasting Glucose 92 70 - 110 mg/dL
TSH 1.38 0.34 - 4.82 uIU/mL
Testosterone 68 2 - 45 mg/dL
HgbA1C 5.1 4.3 - 6.1 %
17-OHP 79 < 285 ng/dL ****
* Estradiol - Mid-follicular phase: 27-122;  Periovulatory: 95-433;  Mid-luteal phase: 49-291
** LH - Follicular phase: 2.12-10.89;  Mid-cycle: 19.18-103.03;  Luteal: 1.2-12.86
*** FSH - Follicular phase: 3.85-8.78;  Mid-cycle: 4.54-22.51;  Luteal: 1.79-5.12; Postmenopausal: 16.74-113.59
**** 17-OHP - Follicular phase: <185; Luteal phase: <285

A few of those with the *'s depend on where I am in my cycle.  Since I'm CD60 I'm guessing I'm in the luteal phase?  I'm sure that isn't right because I never ovulated.  The only number that is high is my testosterone and that is common for a women with PCOS.

IVF

I was told yesterday the IVF wait list is at about 9 months right now.  But it could become shorter if other people drop out of the program.
-Selbe
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